SUPPORT

ARG1D Patient Registry

One of the priorities of Arginase 1 Deficiency Foundation is to encourage and foster a community of individuals affected and interested in Arginase 1 Deficiency. There are so few of us. If you would like to be part of this online community, please register below.

The information collected below is to help us get to know the Arginase 1 Deficiency community a little bit better. For those interested in sharing, we will use this information to help our small community connect, plan events and research. 

This information will not be shared with anyone outside of the board.

NOTE: No fields are mandatory, share only what you are comfortable sharing.

Your Details

Name
Address
What is your connection to Arginase 1 Deficiency?
Gender
Type of Diagnoses
Are there any other individuals in the family that have Arginase 1 Deficiency?
I would like to share my contact information in a private patient directory (select areas you'd like to share) 
Sign up here for ARG1-D newsletter.
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