Meet Our Families

In Honor of JOSH on RARE DISEASE DAY A Mother's Story Joshua Eaton, Pioneer in the ARG1-D Community, Age 27 South Shore, Massachusetts We share Josh's story so his life can inspire [...]

A Song for Jackson This song is dedicated to Jean, my partner, our son Jackson, the children and families affected by Arginase 1 Deficiency, Urea Cycle Defects, and rare diseases. My [...]

Meet Jackson Meet Jackson, age 30, with parents Jean and Leafy Southern California Living with ARG1-D Jackson, age 30, is a self-described cooking fanatic. It is a joyful family experience, involving [...]

Meet Nina Meet Nina At seven years old, Nina has never met a stranger – each person she meets is immediately her friend.  Nina loves to paint, to create and would [...]

Meet Willow Since the moment her mom Tanja realized she was pregnant, her daughter Willow has been full of surprises. Today, Willow is a nurturing, kind, sweet 10-year-old, who loves her [...]